Hayley Okines dies from rare premature aging disease aged 17 – Medical News Today

Medical News TodayHayley Okines dies from rare premature aging disease aged 17Medical News TodayThere are approximately 200-250 children living with the condition across the globe at any one time. Progeria is caused by an abnormal protein in the LMNA gene, called progerin, which interferes with the production of lamin A – a protein that …Progeria sufferer Hayley Okines dies, aged 17Telegraph.co.ukTeen Who Brought Hope to Those With 'Aging Disease' Dies From Rare DisorderKMBZHutchinson-Gilford Progeria Syndrome: What is it and how does it affect those …The Independentall 290 news articles »

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Press Release

Cydan Development Inc . An orphan drug accelerator that identifies and de-risks programs with significant therapeutic potential announced today that it partnered with MassChallenge in funding scholarships to support innovations that improve the lives of patients with rare diseases.

What is progeria? Everything you need to know about the rare genetic disorder – Irish Examiner

Irish ExaminerWhat is progeria? Everything you need to know about the rare genetic disorderIrish ExaminerHow rare is it? Progeria is such a rare condition it affects around one in four to eight million children, which means there are only an estimated 200 to 250 progeria sufferers around the world at one time.and more »

https://www.dpsw.org/genetic-condition